COVID-19 Longitudinal data releases

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This section contains details of the latest COVID-19 longitudinal study data releases and where to access these. It will be updated when new data is made available.


October 2020

Understanding Society

Data from the fourth Wave of the Understanding Society COVID-19 survey is available to download from the UK Data Service. Data for this fourth wave of the study was collected in July 2020.

The survey contained questions on a range of topics, including COVID-19 symptoms, long-term health, caring and volunteering, loneliness, employment and finances, religion, sleep, nutrition, and life satisfaction. The Wave 4 survey also has data from the survey sent to children aged 10-15 using questions from the Strengths and Difficulties Questionnaire.

Access the Understanding Society COVID-19 dataset (Study number: 8644)

September 2020

English Longitudinal Study of Ageing (ELSA)

Data from the first ELSA COVID-19 Substudy is now available to download from the UK Data Service. Data from this first wave of the substudy was collected in June and July 2020.

The survey contains information on a range of topics, including symptoms of COVID-19, other health issues and health behaviours, mental health, demographics, financial circumstances and work, and social connections and isolation.

Access the ELSA COVID-19 dataset (Study number: 8688)

Avon Longitudinal Study of Parents and Children (ALSPAC)

Data from the second ALSPAC COVID-19 survey is now available for researchers to access. Over 6,400 study participants took part in the survey, which ran from May to July 2020.

The survey contains information on symptoms of COVID-19 and seasonal flu, mental health and social, behavioural and lifestyle factors. More information about the dataset can be found in ALSPAC’s Wellcome Open Research data note.

Visit the ALSPAC to find out more and access the data


August 2020

TwinsUK

Data is available from the second round of the TwinsUK COVID-19 Personal Experience (COPE) questionnaire for researchers to access. The questionnaire was combined with additional questions on fatigue and symptoms of long Covid. This questionnaire was administered in late July/early August 2020 and 5,308 participants responded.

The questionnaire covers participants’ usual health; symptoms and their health since the pandemic; tiredness and fatigue; effect of COVID-19 on participants’ lives; responsibilities and social network; and personal circumstances and feelings.

Visit the TwinsUK website for more information on accessing the data. The data access committee meet regularly and aim to share data with bona fide researchers as much as possible.

Understanding Society

Data from the third Wave of the Understanding Society COVID-19 survey is available to download from the UK Data Service. Data for this third wave of the study was collected in June 2020.

The survey contained questions on a range of topics, including COVID-19 symptoms, employment and working conditions, loneliness and mental health, relationships, and neighbourhood cohesion.

Access the Understanding Society COVID-19 dataset (Study number: 8644)


July 2020

British Birth Cohort Studies and Next Steps

Data from the first COVID-19 survey sent to participants of five nationally representative longitudinal cohort studies has been deposited in the UK Data Service. Over 18,000 people, aged between 17 and 74, took part in the survey, which ran throughout May 2020.

The survey collected information on participants’ physical health, mental health and wellbeing, family and relationships, education, work and finances, time use, and attitudes during the lockdown.

Access the British Birth Cohort Studies and Next Steps COVID-19 data (Study number: 8658)

Understanding Society

Data from the second Wave of the Understanding Society COVID-19 survey is available to download from the UK Data Service. The survey ran from late May to early June 2020.

The survey includes questions on a range of topics including COVID-19 symptoms, physical and mental health, housing, employment and finances, relationships, and time use.

Access the Understanding Society COVID-19 dataset (Study number: 8644)


June 2020

Avon Longitudinal Study of Parents and Children (ALSPAC)

Data from the first ALSPAC COVID-19 survey is now available for researchers to access. Over 6,800 study participants took part in the survey, which ran from April to May 2020.

The survey contains information on symptoms of COVID-19 and seasonal flu, travel prior to the pandemic, mental health and social, behavioural and lifestyle factors. More information about the dataset can be found in ALSPAC’s Wellcome Open Research data note.

Visit the ALSPAC website to find out more and access the data.


May 2020

Understanding Society

Data from the first Wave of the Understanding Society COVID-19 survey is available to download from the UK Data Service. Over 17,500 study participants took part in the first survey.

The survey contains information about mental and physical health, health behaviours, caring, employment, income, education, and family relationships within and beyond the household.

Access the Understanding Society COVID-19 dataset (Study number: 8644)


April 2020

TwinsUK

Data is available from the first round of the TwinsUK COVID-19 Personal Experience (COPE) questionnaire for researchers to access. This questionnaire was administered in April 2020, at the peak of the epidemic in the UK and during the lockdown period. 4,163 participants responded.

The questionnaire covers the effect of COVID-19 on participants’ lives, physical health and mental health; responsibilities and social network; personal circumstances and feelings; home environment and household; and demographic information.

Visit the TwinsUK website for more information on accessing the data. The data access committee meet regularly and aim to share data with bona fide researchers as much as possible.