CLOSER online workshop: Developing data sharing agreements with NHS Digital

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Workshop

Registration is now open for CLOSER's one-day workshop on developing data sharing agreements with NHS Digital. Please note this workshop was planned as a hybrid event but due to COVID-19 related reasons has been moved fully online.

In April 2022, CLOSER will host a one-day online workshop with NHS Digital to identify the potential barriers faced by longitudinal population studies (LPS) in developing and approving data sharing agreements. We will then identify potential routes to address these, mechanisms to make the process clearer and more effective (for both parties) and to prioritise remedial solutions.

Chaired by Andy Boyd, Chair of the CLOSER Data Linkage Working Group and Director of the UK Longitudinal Linkage Collaboration, the workshop will aim to improve the ability of the LPS community to secure data sharing agreements with NHS Digital. All of the NHS Digital ‘Senior Data Approvals Owners’ will be in attendance.

Delegates will also have the opportunity to:

  • workshop common issues with the data sharing application process
  • identify and prioritise potential solutions to these common issues
  • meet and work with NHS Digital Senior Data Approvals Owners who are responsible for assessing data sharing applications and defending applications to the Independent Group Advising on the Release of Data (IGARD).

Delegates will also be able to meet online 1:1 with NHS Digital representatives after the workshop to discuss their specific applications. Please note these will need to be pre-booked ahead of the event by emailing CLOSER’s Digital Communications and Events Manager, Jennie Blows (j.blows@ucl.ac.uk).

Please note, this workshop is just the start of the process and will provide a forum to identify challenges and begin working with NHS Digital to resolve these.

This workshop stems from a CLOSER data linkage project which has also produced an outline framework for the efficient onward-sharing of linkage longitudinal study data and NHS Digital records. The guidance can be downloaded from the CLOSER website.

Workshop agenda

11:00-11:10 Welcome and introductions – Andy Boyd (University of Bristol), Andy Wong & Danielle Freitas Gomes (UCL)

11:10-11:20 A summary of the NHS Digital application process – Mujiba Ejaz (NHS Digital)

11:20-11:30 Roles of the Case Officers and NHS application staff – Charlotte Skinner (NHS Digital)

11:30-11:40 The role of the senior approvals team (SAT) – Kimberley Watson (NHS Digital)

11:40-11:50 An insight into IGARD – Duncan Easton (NHS Digital)

11:50-12:00 A summary of the regulatory landscape – Alex Bailey (Medical Research Council)

12:00-12:45 Lunch break

12:45-14:45 Round table / open discussion:

Identifying issues which complicate & delay LPS applications

  • for NHS Digital to raise precedents where these exist
  • Prioritisation of issues identified (Open table)
  • Addressing the top 3 concerns (Open table)

14:45-15:00 Next steps and AOB

15:00-16:00 Applications 1:1 (Pre-booked appointments with SAT

 

Registering for the workshop

Please note this workshop is invite-only – however, data managers and those managing linkage arrangements at longitudinal studies are very welcome to get in touch and are welcome to join.

Please email Jennie Blows (j.blows@ucl.ac.uk) expressing your interest in joining the event.

Further information

If you have any queries or require further information about this event, please contact our Digital Communications and Events Manager, Jennie Blows (j.blows@ucl.ac.uk).