This workshop is an opportunity to contribute to the development of the Super Cohort - a secure environment where multiple LPS can be efficiently linked with UK-wide NHS COVID data and then accessed for rapid response to COVID-19 research priorities.
About the online workshop
As research efforts continue to respond to urgent COVID-19 research priorities, UK Longitudinal Population Studies (LPS) are a valuable resource for understanding the effects of the virus, informing policy, and saving lives.
Data linkage between LPS data registers provide enormous benefits to researchers through enriching datasets, providing refreshed flows of COVID relevant data and minimising potential sources of bias. With support from the Wellcome Trust, the Wellcome Longitudinal Population Study (LPS) COVID-19 Secretariat is developing the framework for a Super Cohort – a secure environment where multiple LPS can be efficiently linked with UK-wide NHS COVID data and then accessed for rapid response to COVID-19 research priorities. Using this aligned approach, we can improve efficiency of data linkage processes and facilitate rigorous, well-powered research.
The Super Cohort will be open to include the diverse range of UK observational and clinical longitudinal studies; equally, the linked data will be open for controlled access to the bona fide research community. The requirements of data owners and studies will be upheld during these processes.
As a collective effort, the Secretariat require experts in data linkage working with LPS to make this Super Cohort a reality. This project has been identified as a high priority due to its potential to support research questions in the SAGE/NIHR rolling call prioritisation process and, as such, there is an urgent need to make the model an operational resource. We can achieve this by developing ideas and drawing from the expertise of a diverse range of LPS to respond to challenges, maximise research benefits and ensure that the super-cohort can accommodate the needs of all collaborators.
Facilitated by CLOSER, this workshop will be an opportunity to contribute to the development of the Super Cohort model with your expertise in data linkage and/or longitudinal research governance. Delegates will also gain insight into the opportunities this emerging resource can offer your study going forward.
During the session, delegates will also have the chance to:
- learn about the objectives of the super-cohort model and how to participate in the project,
- contribute their ideas on multiple aspects of the project, and
- develop collaborative links with LPS community.
Accessing the workshop
Instructions for how to access the online workshop will be sent to all registered guests prior to the session. Please book your place using the register button at the top of this page to ensure you the meeting details.
If you have any queries or require further information about this event, please contact our Communications and Events Officer, Jennie Blows (firstname.lastname@example.org).
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