About the research
This research project focused on the value gained by linking study data to health data from the NHS. It explored the types of consent used in Understanding Society and the Avon Longitudinal Study of Parents and Children (ALSPAC), with a focus on linkage between study data and Hospital Episode Statistics (HES). HES is a database containing details of all admissions, A&E attendances and outpatient appointments at NHS hospitals in England.
Researchers can now benefit from a CLOSER resource report to help them link longitudinal data to HES. The project team published a paper in November 2014 in the BMC Medical Research Methodology journal outlining their findings around participant consent to linkage in Understanding Society.
Andy Boyd (ALSPAC, University of Bristol)
- 1946 MRC National Survey of Health and Development
- 1958 National Child Development Study
- Avon Longitudinal Study of Parents and Children
- Understanding Society: The UK Household Longitudinal Study
CLOSER resource reports
Knies G, Burton J. Analysis of four studies in a comparative framework reveals: health linkage consent rates on British cohort studies higher that on UK household panel surveys. BMC Medical Research Methodology. 2014;14(125) https://doi.org/10.1186/1471-2288-14-125
Boyd A (et al). Describing the socioeconomic gradient in hospital episode admissions and accident and emergency attendances in a young cohort using NHS Hospital Episode Statistics: Results from an Avon Longitudinal Study of Parents and Children data linkage pilot study. Not yet available – sign up to CLOSER’s email newsletters to find out when it is published.
Boyd A (et al). Child participants in longitudinal research studies are willing to re-enrol and consent for record linkage upon reaching the age of legal majority, although non-response is problematic: Evidence from the ALSPAC birth cohort study. Not yet available – sign up to CLOSER’s email newsletters to find out when it is published.
Read about other CLOSER data linkage projects.